Contact

The more we connect with other NUBPL families, the closer we get to finding treatments and/or a cure. We would love to hear from you so, together, our families can help one another, clinicians, and researchers learn more about NUBPL. Please let us know if you are interested in NUBPL research or have a patient or child with NUBPL. *NUBPL Foundation respects your desire for patient privacy.


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